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NEWS

18 apr 2015

Maria Pia's History

28 aug 2012

Martina's History

15 oct 2012

Sara's History

 

   We created this internet site to support the medichal research and all other people that combat against the "WERLHOF MORBUS".

 

Our daughter is 4 and she has been diagnosed Werlhof’s disease.

As soon as the disease was diagnosed, she was hospitalised and administered with I.V.‘immunoglobulins’ , after this treatment and for the climbing of platelets count she was discharged.

Less then three weeks later, again with the problem, the platelets count was under 20,000.

My baby was hospitalised again, she had I.V. cortisone, and after four days the count was acceptable and she was discharged.

After searching on internet we knew about treatments with melatonin and together vitamin, and we decided to try with it.

We immediately started the treatment after contacting dr. Todisco and 4 days passed for the platelets count to slowly rise, and since that moment we have been decreasing cortisone until completely stop to use it.

We are using only melatonin together with vitamin (for about 12 weeks she haven’t been taking cortisone) and the platelets count is settled at about 20,000.

An important element is that my baby has not bleeding (gum bleeding or nose bleeding...) only two times we noticed small petechiae (few units), vanished after few days.

Read more information in the section “real medical data”.

We are going to update as soon as we get news.

 

Update – 18th November 2006

 

It is two months we haven’t been doing hemochrome, considering the long lasting physical conditions and the absence of symptoms linked to Werlhof’s disease.

 

We are going on with melatonin and vitamin treatment, and the awful side effects of the cortisone cure (bloated face, weariness, mood swings, headache, pains in the joints, etc...) seem to be vanishing.

Our daughter is attending kindergarten and we are going to do hemochrome in few weeks, or if needed.

 

Update – 2nd  January 2007

Last month because of insect stings the baby had a strong anaphylactic reaction that got us to do hemochrome. A count near ZERO was expected, but we realized that platelets count was 14,000. At the end of the allergic reaction, thanks to dr. Todisco’s  suggestions, the situation was settled again.

We are going on with melatonin and vitamin therapy.

 

 

Update – 30th  March 2007

We have not done hemochrome, situation seems to be lasting, my baby goes to school, the therapy is still melatonin and vitamin.

 

 

Update – 11th  June 2007

After the top of the allergy to pellitory we did hemochrome (200 days from the last check), the count is 20,000, without particular symptomatology, we are going on with melatonin and vitamin therapy.

 

 

Update – 23rd June 2007

We have decided to do hemochrome after the improvement of allergy situation, platelets count is 69,200. My baby pulls her first baby tooth out (alone!), with a NORMAL bleeding, without particular symptomatology, and we are going on with melatonin and vitamin therapy.

 

 

Update – 03rd december 2007

We have decided to do hemochrome: platelets count is 63,000. We are going on with melatonin and vitamin therapy.

 

Update – 20th march 2008

 platelets count is 60,000

 there are no particular symptomatology

 we reduced melatotin about 20%

 we are going on with melatonin and vitamin therapy.


Update – 09th july 2008

My baby pulls other two baby tooth out, with a NORMAL bleeding without particular symptomatology, and we are going on with melatonin and vitamin therapy.


Update – 01st sept 2008

platelets count is 67,000

 there are no particular symptomatology

 we are going on with melatonin and vitamin therapy.


Update – 29th jan 2009

platelets count is 109,000

we reduced melatotin about 20%

 we are going on with melatonin and vitamin therapy.


Update – 27th feb 2009

platelets count is 263,000

we reduced melatotin about 25%

 we are going on with melatonin and vitamin therapy.


Update – 05th mar 2010

platelets count is around 100,000

We have probably discovered the reason for the platelets disease: allergy to mites

(DERMAT. PTERONYSSINUS. DERMAT. FARINAE.)

 

TOTAL IGE WAS around 1000 (RIST) and IGE-SPECIFIC was extremely high rated.

 

we are going on with melatonin and NEW anti-mites natural  therapy (after 4 month TOTAL-IGE is downgraded to 600).


Update – 04th jun 2010

platelets count is 247,000

Allergy is going good, Total IGE is 600

 we are going on with melatonin


Update –29th dec 2010

platelets count is 135,000

Allergy is going good, Total IGE next week!

 we are going on with melatonin reduced 20%


Update –10th apr 2015

platelets count is 195,000

 we are going on with melatonin (low dosage)